Saturday, August 20, 2011

Summing it all up

So, I know its been a while. There's just been so much going on, and no time to write. Going to try & do a quick run through now.
We just got back from vacation about 2 weeks ago. We took a road trip from AR to TN to RI. Our vaca lasted a total of 3 weeks. It was a lot of fun...felt really nice to unwind & regroup. Of course I had my one drunken night with out with Todd & Ange~ very much needed. We had a hiccup along the way during our time in TN. Ollie got hospitalized for low oxygen levels (what else is knew!) But this time it was scary. His O2 was in the 60s while he was awake. He got tranfered to another hospital & listed in critical condition. He made a pretty quick recovery though, only 3 days in. Tough guy for sure!
Aiden started school this week. He's already saying he doesn't like school & wants to stay home. He hates they make him lay down and take a nap for 2 hours. Aiden can't be still that long! I feel bad and want to keep him home, but its unrealistic to do so...plus he needs to learn to keep still. On the first day I almost got arrested for walking on school grounds! But seriously I was trying to grab Aiden so Ollie could go to the hospital but the arrogant cop wouldn't let me talk. Assface!
Now, Ollie is back in the hospital for, you guessed it, low O2 levels! He's been poked and prodded so many times. Lots of testing. Doctors thought they knew what it was & did a Ct Scan to confirm and it was NORMAL! Well fairly normal, as normal as lung disease is, but they thought it was a certain type of rare lung disease (chILD) & they were going to send him for a lung biopsy on Monday.  His CT results eft the doctors all speechless. So now we go for a less invasive approach, but still to the OR Monday morning. We'll see what those results show. If nothing impressive, he may get out of here Tue or Wed....and he gets his Oxygen! I never thought I would be so happy to get O2! He will go for a sleep study in a few weeks (they've canceled & rescheduled 2x on us now). Depending on what that shows, our next step may be the lung biopsy afterall because although the CT Scan didn't show evidence of chILD, it doesn't mean he doesn't have it, just means its the kind that even more rare. He's got a long journey ahead of him, but damn it, he's so strong & such a fighter! The one thing I'm the most upset about right now is he is no longer allowed to have feeds by mouth with liquid. So no bottles, no sippy cups...and we've worked so hard to accomplish this goal. He just struggles way too much to breath & eat, even on O2. He is allowed to have real food though, so now we are working on that more & he is doing suprisingly well!
Keegan, that boy! Let me tell you, potty training him has been a breeze. Its all about routine with him. Coming back from vacation was enough to shake up the routine & create a new one. He's done so awesome. He's still afraid to poop on the potty, but he eventually does it. I'm so proud of him!
And lastly, my friends that I've made here are so friggen awesome! They really are there when they say they will be. They have been so wonderful to us this past week. Taking the boys & helping out on short notice! Its been fabulous knowing we have people to count on, that military family. I love ours!

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