Post Op

Really at this point, I should know by know to expect the unexpected. I thought this appointment would be like "Okay cool, G-tube looks good, have a great day, see you in 2 months" Boy was I mistaken. Instead this appointment took over 2 hours, with all 3 boys. Can we say "Holy friggen headache!" I've got a tired, cranky Ollie crying. Aiden is running around because the words "stay still" dont exist in his vocabulary. Keegan freaking out, crying, covering his eyes, jamming himself under the exam table, all because the damn resident touched him and said "Hi", just as I was saying "Please don't talk to him or touch him".....AHHHHHH. My kid hates you, he hates people in general, please don't touch him or even attempt to talk to him....thanks!

So back to the longest damn appointment of my life. The age old question "How's his feeds going?" This always makes me laugh because Oliver SUCKS at eating, he always has. Standard response, we get in about 2oz before he gets too tired and then we finish him off with the G-Tube. Well too bad for us, Oliver has lost 2 lbs in 3 weeks. So now he has to go on a continuous pump feed, 8pm-5am....if this means I don't have to get up 3 times a night to feed him, FABULOUS! We can only give him a bottle 4x a day now, but we are also able to incorporate baby food into his schedule, so his feeding schedule resembles something like a "normal baby". So in the end not so bad news, not fabulous, but not bad.

And I swear to goodness if I hear the phrase "This is very common for kids with cerebral palsy" one more time, I am going to scream. Oliver hasn't ever been officially diagnosed with cerebral palsy but they are all throwing around that damn phrase....so give him the diagnosis already OR stop using that phrase...thank you very much!

Our New Schedule:

5:00am- Pump Off

8:00am- 4oz bottle/gtube

8:45am- baby food

9:30am- nap time

11:00am- 4oz bottle/gtube

12:30pm- baby food w/ rice cereal

2:30pm- 4oz bottle/gtube

3:00pm nap time

4:30pm- baby food

5:30/6:00pm- 4oz bottle/gtube

8:00pm- pump on

And I also must try to work all this in around therapy times....and this schedule needs to be kept pretty strict, so it should be interesting.